Virtual Walk

Daisy

Total Donated:

$60.00

Donors:

Denise Gaskell
Treacy Henry
Janet Hieshetter

Daisy

 

I was diagnosed with a movement disorder called Dystonia in 2007. Dystonia caused my spine, hips and foot to twist.  I couldn’t walk, sleep, play sports or do things I loved to do. I was tired all the time. Then I had deep brain stimulation surgery at MA General Hospital and I got better but it’s not a cure it just relieves my symptoms. Today I am doing really well. I still have to go to MA General to have adjustments done to my stimulators to optimize the therapy and in March 2017 I will have my stimulators replaced. Every few years I have to do that. It’s just an outpatient surgery – but it’s still surgery never the less. Any amount you can donate would be greatly appreciated. Thanks for all your love and support – Bryan Baron 

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.