3rd Fresno Dystonia Zoo Walk Promotes Awareness & Raises Funds for a Cure

10/1/18

The 3rd Fresno Dystonia Zoo Walk took place September 29, thanks to event organizers LuAnne Pinedo-Madden, David Madden, and Holly Machado. Holly is on a mission to promote awareness of dystonia on behalf of her 9-year-old daughter Marisa who is diagnosed. LuAnne survived breast cancer only to be faced with oromandibular dystonia, a focal dystonia that causes painful muscle spasms in the face and jaw. Pinedo-Madden leads the Central California Dystonia Support Group, which Machado founded.

Special guests at the Zoo Walk included H. Spees, Director Strategic Initiatives for the City of Fresno. The Mayor’s Office provided a Dystonia Awareness Proclamation in recognition of the event.

Holly and Marisa appeared on the CBS 47/KGPE Morning Show to promote the Zoo Walk and bring visibility to dystonia.



Dystonia Zoo Walks offer a “twist” on traditional charity walks with no required walking course or expectation other than enjoying a morning at the zoo connecting with others in the dystonia community and promoting awareness. Additional Dystonia Zoo Walks to benefit the DMRF are scheduled across the country. More information about these and additional DMRF events is available at www.dystonia-foundation.org/events.

The DMRF is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia-foundation.org.

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The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.