Original Dystonia Zoo Walk in 7th Year of Raising Awareness & Research Funds


On Saturday, September 22, Karen Flanagan and family members hosted the 7th Annual Cleveland Dystonia Zoo Walk to promote dystonia awareness and raise funds for research. Karen is a member of the DMRF Community Leadership Council and created this event with the support of mother Jane Ann Flanagan and aunt Gale Flanagan. Cleveland is the original and longest-running Dystonia Zoo Walk. Thirteen cities across the country are hosting Dystonia Zoo Walks in 2018.

Thanks to event supporter Carrie Speckman, Governor John Kasich and Lieutenant Governor Mary Taylor of Ohio issued a proclamation recognizing Dystonia Awareness Month, which was presented at the Zoo Walk.

Aasef Shaikh, MD, PhD, a movement disorders specialist from University Hospitals, Cleveland VA Medical Center, and Case Western Reserve University School of Medicine spoke at the event. Look for an interview with Dr. Shaikh in the upcoming Winter issue of the Dystonia Dialogue.

Dystonia Zoo Walks offer a “twist” on traditional charity walks with no required walking course or expectation other than enjoying a morning at the zoo connecting with others in the dystonia community and promoting awareness. Additional Dystonia Zoo Walks to benefit the DMRF are scheduled across the country. More information about these and additional DMRF events is available at www.dystonia-foundation.org/events.

The DMRF is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia-foundation.org.

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The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.