Cincinnati Dystonia Zoo Walk Unites Community to Find a Cure

9/12/18

Despite the rain, hundreds gathered for the 6th Annual Cincinnati Dystonia Zoo Walk on September 8 to support the Dystonia Medical Research Foundation (DMRF). The event is organized by Melissa Phelps, whose two daughters are affected by generalized dystonia caused by tyrosine hydroxylase deficiency, a rare metabolic disease.

“It didn't matter what was falling from the sky,” says Melissa, member of the DMRF Community Leadership Council. “My heart is truly overwhelmed with gratitude. Thank you to my sponsors, team leaders, the DMRF, the Cincinnati Zoo, volunteers, and all my friends and family who always stand behind me. Together we are changing the world. A cure is coming I know it!”

Guest speakers included Drs. Donald Gilbert and Steve Wu from Children's Hospital Medical Clinic, and Dr. Michael Schmerler of Riverhills Neuroscience. Allergan, Ipsen, Merz Neurosciences, and US World Meds were among the event sponsors.

The event was covered by WKRQ/Q102 Cincinnati radio, which has a slide show from the event on there website. Click here for scenes from the Zoo Walk.

Dystonia Zoo Walks offer a “twist” on traditional charity walks with no required walking course or expectation other than enjoying a morning at the zoo connecting with others in the dystonia community and promoting awareness. Additional Dystonia Zoo Walks to benefit the DMRF are scheduled across the country. More information about these and additional DMRF events is available at www.dystonia-foundation.org/events.

The Dystonia Medical Research Foundation (DMRF) is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia-foundation.org.


 

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