3rd Annual Portland Dystonia Zoo Walk Raises Awareness & Research Funds

8/21/18



The 3rd Annual Portland Dystonia Zoo Walk took place August 19 thanks to DMRF support leader Dee Linde and members of the Portland, Oregon & Southwest Washington Dystonia Support Group, which she founded. Special guests included Stacey Jochimsen from the office of US Senator Jeff Merkley. Click here to read a letter from Senator Merkley in support of the Zoo Walk. DMRF Support Leader Denise Gaskell traveled from New York to attend, and DMRF supporter Amy Yurchision traveled from Pennsylvannia to particpate. Sponsors include Allergan, Ipsen, Medtronic, and US WorldMeds. Proceeds support the Dystonia Medical Research Foundation mission.

Dystonia Zoo Walks offer a “twist” on traditional charity walks with no required walking course or expectation other than enjoying a morning at the zoo connecting with others in the dystonia community and promoting awareness.

In 2000, Dee Linde was among a small group of pioneering patients to undergo deep brain stimulation (DBS) surgery which has alleviated most of her dystonic symptoms. In addition to leading the Portland, Oregon & Southwest Washington Dystonia Support Group, Dee founded an online group for DBS patients. She has served on the Department of Defense (DOD)’s consumer review panel for dystonia research applications and has testified before the Senate Defense Appropriations Subcommittee urging legislators to include dystonia in the DOD’s exclusive medical research program.

Additional Dystonia Zoo Walks to benefit the DMRF are scheduled across the country. More information about these and additional DMRF events is available at www.dystonia-foundation.org/events.

The Dystonia Medical Research Foundation (DMRF) is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia-foundation.org.


 

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