DMRF Mourns Passing of Co-Founder & Champion Samuel Belzberg


The DMRF Board of Directors and leadership are heartbroken to report that Chairman and Co-Founder Samuel Belzberg died yesterday following a massive stroke. He passed away surrounded by family. Mr. Belzberg is survived by Frances, his wife of 68 years; his children, Cheri, Marc, Wendy and Lisa; 16 grandchildren and 12 great-grandchildren.

Mr. Belzberg was a Canadian businessman and philanthropist whose career included extensive international experience in finance and real estate. He and Mrs. Belzberg founded the DMRF in 1976 shortly after daughter Cheri was diagnosed. Mr. Belzberg was the ultimate dystonia advocate and champion, relentless in his drive to find a cure and to provide services for families, like his, whose lives were upended by the disorder. Mr. Belzberg remained closely involved in the DMRF’s activities until the end of his life. In the 42 years of the organization’s history, only once were the Belzbergs absent from the annual Board of Directors Meeting. It is difficult to overstate the influence Mr. Belzberg has had on elevating and transforming the field of dystonia research and the proliferation of programs in service to patients and families. His vision and leadership illuminated a more hopeful path forward for every family touched by dystonia.

Mr. Belzberg is sorely and fondly missed. His legacy lives on indefinitely in the work of the Foundation and the countless families who continue to be helped. Details about his remarkable life and career are available here.

If you wish to honor Mr. Belzberg by sharing how DMRF has benefited you, please send your message to and your remarks will be forwarded to Mrs. Belzberg and the family.

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