“Dystonia Detectives” Descend on Indianapolis Canal Walk to Hunt for Cure
Indy Hunt for a Cure Raises Awareness & Research Funds
Teams of “detectives” combed the Indianapolis Canal Walk on October 1 for clues in the first-ever Indy Hunt for a Cure, a scavenger hunt to promote greater awareness and support the DMRF. Participants competed for points by answering trivia questions, completing tasks, and collecting items. Local news stations covered the event, expanding the awareness impact throughout the metro area,
The event was organized by DMRF supporters who have a personal connection to dystonia. Sunshine Fox’s 7-year-old son Aidan was diagnosed at age 3, but the underlying cause for his complex case remains unknown. He uses a wheelchair for mobility and is non-verbal. The family travels from their home in Whiteland to Cincinnati for his care. Sarah Ernstberger of Indianapolis is an elementary school teacher who has experienced chronic, painful muscle spasms in her neck and hand since childhood. He mother Sally Ernstberger was also part of the organizing committee. 25-year-old Chelsi Christman of Muncie experiences tremors, jerking movements, and painful muscles contractions throughout her body. Chelsi and the Ernstbergers have traveled to Washington DC to advocate on behalf of the dystonia community and push for federal research funding.
The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.
Accelerating Research & Inspiring Hope
The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.