450+ Attend 4th Annual Pittsburgh Dystonia Zoo Walk


On Sunday, September 24, over 450 people gathered to support the 4th Annual Pittsburgh Dystonia Zoo Walk organized by MaryRae Nee and Ed Cwalinski. Chris Mack of 93.7 The Fan/KDKA-FM Pittsburgh gave greetings and introduced guest speakers Dr. Mark Richardson, Director of the Movement Disorders Program at University of Pittsburgh Medical Center, and Emma Pinto, Development Associate at Dystonia Medical Research Foundation (DMRF). Pittsburgh is one of a dozen cities to host a Dystonia Zoo Walk in 2017.

MaryRae and Ed co-lead the Western Pennsylvania Dystonia Support Group with Shayla Anthony and Fran Lehman, and MaryRae Nee, all of who are personally affected by dystonia.Dystonia is a chronic, often disabling, movement disorder marked by extreme muscle contractions that cause involuntary movements and abnormal postures of the body and limbs. It is the third most common movement disorder. There are multiple forms of dystonia that impact people of all ages and backgrounds. Common signs can include an inability to control the position of the head, excessive blinking, a breathy or choking voice, hand cramps, or a dragging foot.

The Dystonia Medical Research Foundation (DMRF) is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia-foundation.org.

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.