White Sox & Red Sox Host Double Header for Dystonia Awareness
“Dystonia Day” Marks Final Week of Awareness Month
The Chicago White Sox and Boston Red Sox are simultaneously hosting “Dystonia Day” at home on Wednesday, September 27. The events are held in partnership with the Dystonia Medical Research Foundation to raise awareness of a little-known neurological disorder that affects no fewer than 250,000 Americans. Local dystonia patients, their families, and members of the medical community will fill the bleachers at Guaranteed Rate Field and Fenway Park. September is Dystonia Awareness Month; awareness and fundraising events are happening across the country.
Individuals living with dystonia struggle against their own bodies to walk, write, sit, see, eat, and/or speak. The nervous system is hijacked by chaotic signals that instruct muscles to contract excessively, causing involuntary, uncontrollable movements and abnormal postures in the body and limbs. There are numerous manifestations of dystonia that impact people of all ages and backgrounds. Common signs include twisting or abnormal movements of the head and neck, excessive blinking, a breathy or choking voice, hand cramps, or a twisted foot. Despite frequent misdiagnosis, dystonia is more common than Huntington’s disease, muscular dystrophy, and Lou Gehrig’s disease (ALS). There is currently no cure, and though treatments exist there is no single therapy that benefits even a majority of patients.
The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization available to assist individuals and families impacted by dystonia. The mission is to advance research for improved dystonia treatments and ultimately a cure, promote public awareness, and provide support resources for patients and families.
Angels at White Sox, 7:10 PM EST
Guaranteed Rate Field, 333 West 35th Street, Chicago, IL 60616
Blue Jays at Red Sox, 7:10 PM EST
Fenway Park, 4 Yawkey Way Boston, MA 02215
Accelerating Research & Inspiring Hope
The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.