Ready for Dystonia Awareness Month?


Campaigns and events are happening across the country to bring greater visibility to dystonia. Join us!

September is Dystonia Awareness Month. We know many of you are preparing to participate in dystonia awareness activities. We want to express our appreciation to everyone who is working to increase awareness of dystonia. Your efforts today will make a difference for the entire community, and we are grateful to you.

Here are a list of efforts supported by the DMRF.

Dystonia Moves Me: Reaching the Undiagnosed

Right now, how many people do you think are struggling with dystonia but not yet diagnosed? You can help get the word out about dystonia by joining Dystonia Moves Me, DMRF's annual awareness campaign. The DMRF is calling on volunteers to ask local healthcare offices and businesses across the USA to provide dystonia awareness materials in their waiting rooms. The DMRF makes it easy for you to invite healthcare practices to request awareness materials for their offices.

To get started, order your free Dystonia Moves Me Volunteer Kit online at For highlights from the campaign throughout the month, go to:

By taking part in the Dystonia Moves Me campaign you can enter a random drawing for a $100 gift card. To be included in the drawing, submit photos and images of your awareness efforts to the DMRF at Or post photos and videos with hashtag #DystoniaMovesMe on the DMRF’s Facebook wall and on Twitter (@dmrf).

Dystonia Awareness Merchandise

The DMRF has merchandise to help you promote greater dystonia awareness wherever you go. Order your limited edition dystonia awareness swag at

Community Events

Thousands of supporters are expected to join us for local events to raise awareness and also provide an opportunity for community building while raising funds to support the mission of the DMRF.

Dystonia Zoo Walks:  11 cities are hosting Dystonia Zoo Walks in 2017. The DMRF is pleased to present a number of fabulous Zoo Walks during and surrounding Dystonia Awareness Month (#letszoothis):

And Don’t Miss:

For a complete list of DMRF events, visit

Living Well with Cervical Dystonia

The DMRF is partnering with Allergan on a seried of meetings focused on cervical dystonia featuring movement disorder specialists and patient ambassadors, though individuals with all types of dystonia are welcome to attend:

Questions? Contact the DMRF.

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.