Michigan Dystonia Community Unites at 4th Annual Zoo Walk

Hundreds Attend to Raise Awareness & Research Funds

7/19/17

On Sunday, approximately 400 people gathered at Detroit Zoo for the annual Detroit Dystonia Zoo Walk. Eleven cities across the country are hosting Dystonia Zoo Walks in 2017. The event was organized by Rosemary Young, a member of the DMRF’s Community Leadership Council and founder of the Metro Detroit Dystonia Support Group.Sponsors include Allergan, Merz Neurosciences, The Henry Ford Parkinson's Disease and Movement Disorders Center, and many others.

Families traveled from across the state to attend, and members of multiple Michigan dystonia support groups assembled teams to show their support. Guest speakers included dystonia clinician-researcher and past DMRF Medical & Scientific Advisory Council Member Dr. William Dauer of University of Michigan, and neurosurgeon Dr. Ellen Air of Henry Ford Health System.


Rosemary and Edward Young’s six-year-old son Kavin is diagnosed with dystonia. Through the DMRF, Rosemary has traveled to Washington, DC to advocate for federal research funding and protecting treatment access on behalf of the dystonia community and has participated with Kavin in volunteer-driven clinic days to educate local medical school students on dystonia from the patient perspective.

Additional Dystonia Zoo Walks are scheduled in communities across the country.

The Dystonia Medical Research Foundation (DMRF) is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families. The DMRF can be reached at 800-377-3978 or www.dystonia-foundation.org.

Photos by Don’t Blink Photography.

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