DMRF Events Put “Twist” on Charity Walks


Eleven cities across the country are hosting Dystonia Zoo Walks in 2017. Last year, 11 Zoo Walks drew 5,000+ participants. The purpose of this community day at the Zoo is to raise dystonia awareness and funds for research.

Dystonia Zoo Walks put a ‘twist’ on the idea of a charity walk. Dystonia Zoo Walks do not have a formal walking course; in fact participants don't have to walk at all. Dystonia Zoo Walks are family-friendly community events to raise awareness of dystonia and to support the work of the DMRF. Participants can spend the day at the Zoo or just stay for the DMRF festivities.

The DMRF thanks members of the Central California Dystonia Support Group and leaders Luanne Pinedo Madden, David Madden, and Holly Machado for hosting the first Dystonia Zoo Walk of the year in April at Fresno-Chaffee Zoo. Many thanks as well to Melvin Helm, MD and Harrol Hutchison, MD for sharing insights into diagnosing and treating dystonia. Participants were joined by Parker, mascot of the Fresno Grizzlies Baseball Team.

Sue Baron and family organized the Southern New England Dystonia Zoo Walk at Southwick's Zoo in Mendon, Massachusetts on June 10. Mandi Guilfoyle spoke about her experiences with dystonia and deep brain stimulation, emphasizing the importance of continued dystonia research.

On June 17, hundreds gathered for 2nd Twin Cities Dystonia Zoo Walk organized by Shanna and Brad Schmitt, Billy McLaughlin, and members of the Minnesota Dystonia Support Group. Speakers included St. Paul Mayor Mayor Chris Coleman and dystonia researcher Josuah Aman, PhD from University of Minnesota.

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Upcoming Dystonia Zoo Walks
Detroit – July 16
Portland (OR) – July 22
St. Louis – August 26
Cincinnati – September 9
New York City/Bronx - September 10
Cleveland – September 23
Pittsburgh – September 24
Philadelphia – October 15

Also, Don’t Miss...
Dystonia Patient Meeting (NYC) - July 11
Hunt for a Cure (Chicago) - July 16
Dystonia Awareness Month – September
Dystonia Patient Forum (Lansing, MI) – September 8
Cards Against Dystonia Poker Night (Shakopee, MN) – September 9
Toss4Dystonia (Buffalo, NY) – September 16
Dogs for Dystonia Walk (Marion, IA) – October 7
Chicago Basket Bash – October 29

For a complete list of events as dates are confirmed, click here.

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.