ACTION ALERT: Keep Dystonia Eligible for DOD Research Funding


Help us make sure dystonia continues to be included on the list of eligible conditions for the Department of Defense Peer Review Medical Research Program. We are asking advocates in the States represented by the Senators who serve on the Senate Defense Appropriations Subcommittee (members listed below) to tell their Senator about the importance of including dystonia on the list.  

Please help us by providing the DAN with a letter to be delivered to your Senator serving on the Defense Appropriations Subcommittee and ask that they continue to support the inclusion of “dystonia” as condition eligible for study through the Department of Defense Peer-Reviewed Medical Research Program during the Fiscal Year (FY) 2018 appropriations process.  

As a result of our past grassroots outreach, the Senate has recognized dystonia as a condition eligible for study annually for a number of years. This support allows dystonia medical researchers to compete for nearly $278 million in federal research funding each year.

Senators are currently working on the FY 2018 DoD appropriations bill and deciding which conditions will be included on the next PRMRP eligible conditions list. Being included on the list one year is no guarantee of being included again in the next year. At this critical juncture, please reach out to the offices of your Senators and ask that they “once again support the inclusion of “dystonia” in the DOD PRMRP’s eligible conditions list in FY 2018.”  

•    Review the template letter attached for you to write your letter.

•    E-mail DAN’s Washington Representative, Philip Goglas II, at and let him know that you would like to reach out to your Senator in this regard. Please fill out the letter with you information and send it to Phil to deliver to the appropriate office.

•    If you are well-acquainted with the staff in your Senator’s office, please feel free to send them a personal e-mail or coordinated group message through Phil (we want to make sure they do not receive multiple or overwhelming e-mails on this issue).

Thank you for your help.  This will help us with our upcoming efforts during Advocacy Day, March 21-22nd.

Thad Cochran, Mississippi                  
Dick Durbin, Illinois
Mitch McConnell, Kentucky              
Patrick Leahy, Vermont
Richard Shelby, Alabama                  
Diane Feinstein, California
Lamar Alexander, Tennessee              
Patty Murray, Washington
Susan Collins, Maine                          
Jack Reed, Rhode Island
Lisa Murkowski, Alaska                   
John Tester, Montana
Lindsay Graham, South Carolina       
Tom Udall, New Mexico
Roy Blunt, Missouri                            
Brian Schatz, Hawaii
Steve Daines, Montana                       
Tammy Baldwin, Wisconsin
Jerry Moran, Kansas

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.