URGENT: Take Action on Healthcare Reform


Please contact your two Senators and your House Representative to ask them to support critical patient protections during the current healthcare reform effort.


Congress is currently debating significant changes to the healthcare system, including modifications that will impact private insurance expenses and accessibility. This debate has the potential to create many negative outcomes for individuals and families affected by chronic or costly medical conditions. If federal patient protections are ultimately removed or weakened, then many patients could be exposed to increased costs, medical bankruptcy, and lack of access to needed care or therapies.

Members of Congress need to understand that their constituents expect them to maintain and strengthen patient protections in the healthcare system. The best way to educate your two Senators and your House Representative about your needs and earn their support for patient protections is to connect with their offices and make your voice heard.

Take Action

  • Secure the contact information for your two Senators and one Representative by visiting www.Senate.gov and www.House.gov and using the “Find Your Senator/Representative” query tool in the upper right corner.
  • Call the office and ask for the Health Legislative Assistant. You can either leave a voicemail or request their e-mail address and send them a message using the template below.  If you call, you can use the template as a guide in your conversation.
  • Politely and occasionally follow up on the request. You should have an expectation that the office will respond to your specific concerns.
  • If you would like to do more, you can request a brief meeting with the staff at your members’ local offices (the location information is on their websites).

[Message Template Below]

Dear _______,

My name is _________ and I am a constituent from _________. I am also an advocate for the dystonia community.  Dystonia is a neurological movement disorder that causes muscles to contract and spasm involuntarily.  It affects men, women and children.  Dystonia can be generalized, affecting all major muscle groups, and resulting in twisting, repetitive movements and abnormal postures or focal, affecting a specific part of the body such as legs, arms, hands, neck, face, eyelids and vocal cords.

As you and your colleagues consider healthcare reforms, please make sure any proposal maintains crucial patient protections that promote access and prevent financial hardships. Specifically, please continue to:

  • prohibit pre-existing condition discrimination
  • allow young adults to stay on family coverage until they are 26
  • limit out-of-pocket costs for patients
  • restrict lifetime and annual caps on benefits

[Add a paragraph of brief information about the medical condition you are concerned about. Tell your story.]

Thank you for your time and your consideration of this letter. Please tell me how you have responded to my request.




Questions about this Action Alert? Contact the DMRF.

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.