Event Details

Greater Washington DC Dystonia Support Group Meeting

Location: Holy Cross Hospital, Silver Spring, MD

From: November 19, 2017 at 12:30pm to: 3:30pm


Join us for our final meeting of 2017, as well as the support group's 30 year anniversary! To celebrate this special occasion, lunch will be provided.

Date & Time:
Sunday, November 19, 2017

Holy Cross Hospital
1500 Forest Glen Rd.
Silver Spring, MD 20910-1484

Guest Speakers:
Dick Stuart, MC, DMin
Topic: Navigating the Dystonia Journey

Stephen Grill, MD
Topic:How treatments have changed over the last 30 years, with a look to the future.

Dick Stuart, MC, DMin is a retired clergyman and psychotherapist. Mr. Stuart of New Hampshire is a DMRF Regional Coordinator and has led/participated in dystonia and spasmodic dysphonia (SD) support groups since the 1970s. Mr. Stuart developed SD and writers’ cramp while working as a pastor in Australia around 1974. His search for a diagnosis and treatment went through many doctor consultations, various muscle relaxant drugs, speech and voice therapy, psychotherapy and vocal rest for months. After 15 years he was correctly diagnosed (a life-changer!) and had many successful Botox injections over the next 25 years. In 2014 Mr. Stuart was accepted by Dr. Gerald Berke at UCLA for the SLAD-R surgery. Recovery has been complete and freed him from the up-and-down aspect of Botox injection treatments. The connections he has made through the internet and his blog have widened awareness and encouraged many others to consider SLAD-R surgery.

As lunch will be provided by Medtronic, please RSVP in advance to Sally Presti at 301-627-1657 or Virginia Foster at dcdystonia.editor@yahoo.com.  

We are planning gluten free and vegetarian options. Please let us know if you have any other dietary restrictions. 

Driving Directions to Holy Cross Hospital:    
From I-495, take exit 31, Georgia Ave - Wheaton (Rt. 97 North), Turn right onto Forest Glen Rd, Follow 4 blocks (.3 miles) to Holy Cross Hospital on the right, at the corner of Forest Glen and Dameron Drive.

Metro Directions to Holy Cross Hospital:
Holy Cross Hospital is located five blocks from the Forest Glen (Red Line) Metro station. From the station, cross Georgia Avenue then walk five blocks down Forest Glen Road.  Hospital is on the right.

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.