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Questions for DBS Provider
Deep brain stimulation (DBS) is a neurosurgical procedure that requires an experienced multi-disciplinary medical team.
If you are considering DBS or if DBS has been recommended to you by a movement disorder team, consider discussing the following questions with your doctors:
- How many people with dystonia has your center treated with DBS? What forms of dystonia have you treated with DBS?
- What are the outcomes of your DBS for dystonia patients? Do you publish your results?
- What percentage of your DBS for dystonia patients have complications during or following the surgery? What are the most common complications you encounter and how do you address them?
- Am I a good candidate for DBS? Why or why not?
- Where can I get a second opinion?
- Please describe the DBS for dystonia process, from beginning to end. What are the surgeries like? What does recovery entail? What can I expect from the programming phase?
- What are the risks of DBS treatment for dystonia?
- What are the potential side effects of DBS surgery for dystonia?
- How can the surgery or side effects be reversed?
- What can I expect my results to be like? How long does it take before the full benefit of DBS is apparent?
- Are there any cosmetic issues related to the implanted hardware I should be aware of?
- What tests are needed prior to surgery?
- What kind of battery will be used? How often can I expect to need a battery change?
- What type of follow-up is needed after surgery? Who will program the DBS unit?
- What are my short-term and long-term restrictions after DBS?
- What is the cost of the procedure and what arrangements must I make to ensure coverage through my insurance provider?
- Are there issues pertaining to DBS surgery we have not yet discussed that I should be aware of?
For assistance locating movement disorder centers with expertise in deep brain stimulation for dystonia, contact the DMRF.
Accelerating Research & Inspiring Hope
The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.