Friends

Total Donated:

$7650.00

Donors:

Pamela Bayard
Cameron Boeckel
Carol and Paul Boeckel
Ann Brown
Jane Cohen
Patrice and Christopher Boeckel
Edith Davidson
David DeRosa
Toni Dixon
Ryan Flynn
Lachman Family Foundation Inc.
Norman Gebeloff
Robert Gebeloff
Stephen Gebeloff
Anna Gimuriman
Kate Greenfield
LS Interiors Group
Tracy Kirkpatrick
Andrea Kovach
Debra Leisten
Verona Liquor License LLC
Nancy Link
Hollie A. Machen
Chipotle Mexican Grill
Chipotle Mexican Grill
Rebekah Moore
Robert Nathans
Sandra Nathans
Kathryn and Richard O'Neill
Max and Ruth Oltarsh Foundation
sara onufer
L.A. Perkins
Deborah Raimo
Steve Rozenfeld
Jose E Sanchez
E.Michael Shine
moshe spetner
Nathan Taubenfeld
Carole Tordi
Helene Wingens
David Zappitell

Miles4Movement - TCS NYC Marathon

 

Hi everyone! My name is Marissa and along with my Uncle Steve (left) and his friend Carole (pictured at right), we will be running the New York Marathon to promote awareness and raise money for the Dystonia Medical Research Foundation. The name of our team is Miles4Movement. 

At the age of 9, my brother Josh was diagnosed with a rare genetic neurological movement disorder called Dystonia. Up until his diagnosis, he did what any another young kid would do. He would play sports, be active, and have a smile that would light up any room. After his diagnosis, Josh took 25 pills a day to help control his symptoms. Three years ago he decided to undergo deep brain stimulation surgery and showed great improvement throughout the years. However, there still is no cure. 

Josh has always been our number one supporter and growing up seeing the battles and obstacles he has endured motivated us to run the New York Marathon to raise awareness for Dystonia. Each day for Josh and many others who suffer from this rare disorder can feel like a marathon. 

Even though there is currently no cure for Dystonia, with everyone’s kind donations we will be one step closer to finding a cure. So please support the cause because every dollar counts!!

 

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.