Keevan Chang On
Christine von Metzsch
Carrie Siu Butt - TCS NYC Marathon
Please join us to support Carrie Siu Butt in the TCS NYC Marathon on November 5.. A fierce advocate of dystonia and passionate runner, Carrie has served as a tireless inspiration for those with dystonia for years. Diagnosed at age 12 with dystonia, she hasn’t let it stop her. Instead, she has trained with passion and dedication to participate in a combination of 10k’s, half marathons, and a marathon. Her career as a runner with dystonia is inspirational, to say the least. Once struck with the fear of being confined to a wheelchair as her dystonia progressed, she has gone above and beyond in training and serving as an advocate for dystonia along the way. Carrie underwent Deep Brain Stimulation (DBS) in 2006. Six weeks after brain surgery, she began to walk. One year after surgery, she ran her first 10k. Since then, the miles have rolled by with incredible determination.
Dystonia is a neurological movement disorder that strikes children as young as eight and may affect multiple generations in a single family. Symptoms include uncontrollable muscle spasms that twist the body into involuntary movements.Carrie runs to remind everyone with dystonia that they have the opportunities to be their own heroes. “My lasting message would be don't ever give up, don't fight the Dystonia, accept it as your super power - your power to be different and be able to do different things that other able bodied people can't.”
Accelerating Research & Inspiring Hope
The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.