About Us

The DMRF is a 501(c)3 organization dedicated to serving all people with dystonia and their families.

Since 1976, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.

Contact the DMRF

Below is a video of reporter and broadcaster Fiona Ross, now Chair of the Dystonia Society UK, interviewing President of the Dystonia Medical Research Foundation (DMRF) Art Kessler about how the DMRF is working to advance research and support affected individuals and families. Art Kessler has lived with symptoms of dystonia since childhood.

Below is a video of Board Members Nancy Harris and Dennis Kessler talking about the progress they have seen in the dystonia community since the early days of the DMRF and the personal connections that keep them active with the Foundation after all these years.

To view additional videos about the work of the DMRF, visit our YouTube channel at http://www.youtube.com/facesofdystonia

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.