For over 50 years, we have been dedicated to serving all people with dystonia and their families.

Join us, and be a part of the global effort to find a cure for dystonia.

Latest News & Events

Group of Zoom attendees.

Thank You for Supporting Dystonia Awareness Month

Thank you to everyone who attended Dystonia Zoo Day events last month and tuned in to Virtual YOU Day on Sept. 30, with a special shout out to all of the presenters who shared their perspectives on the importance of support and self-care for anyone impacted by dystonia. Self-care reminders will be posted on DMRF social media in the weeks to come, and a recording of the Virtual YOU Day program will be shared on the DMRF YouTube channel and website later this fall. Visit the DMRF Events page to learn more about the remaining Zoo Days of the 2026 season.

  • Child with a backpack.

    School Support for Children with Dystonia: 504 Plans and IEPs

    September 11, 2026
    For children with dystonia, symptoms such as involuntary movements, muscle contractions, abnormal postures, fatigue, pain, or difficulties with writing, walking,…
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  • Group inside a gym.

    Three More Dystonia Zoo Days Scheduled for October and November

    August 6, 2026
    Get ready for the upcoming Dystonia Zoo Days and visit the event websites to learn more about T-shirt deadlines and…
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  • Close-up of a hand gripping a wheelchair wheel, with the Dystonia Medical Research Foundation logo in the upper left and the caption 'Traveling with Dystonia' at the bottom, in an airport setting.

    Helpful Tips for Traveling with Dystonia

    August 5, 2026
    Traveling by airplane during the busy summer travel season means more crowds and possible delays for everyone, and a trip…
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Join us, and be a part of the global effort to find a cure for dystonia.

Two people holding a proper photo frame that says "Dystonia Moves Me".