For over 50 years, we have been dedicated to serving all people with dystonia and their families.
Join us, and be a part of the global effort to find a cure for dystonia.
Latest News & Events
Thank You, Dystonia Zoo Day Participants
Many thanks to all the event organizers, volunteers, medical experts, sponsors and attendees who participated in the final Dystonia Zoo Days of the 2026 season. This year there was a total of 10 Dystonia Zoo Days—starting in July with Portland, OR on the West Coast and ending in November with Bridgeport, CT on the East Coast. A Dystonia Zoo Day might be the first time a person with dystonia meets someone else with the same rare movement disorder. It is an opportunity for awareness, education and connection, made possible by the many volunteers who help put these events together. We are grateful to everyone who donated, sponsored and attended these Zoo Day events and we’ll see you again next year! Photos from all 2026 Dystonia Zoo Days will be added to the DMRF Flickr site.
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November is National Family Caregivers Month
November 2, 2026The theme for the 2026 National Family Caregivers Month is “Care Connects Us.” The Caregiver Action Network defines a caregiver… -
Registration Open for NINDS Virtual Dystonia Workshop Nov. 19
October 31, 2026Join the DMRF and the National Institute of Neurological Disorders and Stroke (NINDS) for the virtual 2026 NINDS Dystonia Workshop:… -
Upcoming Deadlines for 7th Samuel Belzberg International Dystonia Symposium April 7-9, 2027, in Seville
October 24, 2026The 7th Samuel Belzberg International Dystonia Symposium will be held April 7-9, 2027, in Seville, Spain. Co-chaired by Buz Jinnah,…
Join us, and be a part of the global effort to find a cure for dystonia.
