





Portland Dystonia Zoo Day on July 26
If you have already registered for the 2025 Portland Dystonia Zoo Day, we thank you for your support and look forward to seeing you at the Polar Plaza in the Oregon Zoo on July 26!
It’s not too late to register for the Portland Dystonia Zoo Day and have the opportunity to spread awareness, create community, and offer support. Our featured speakers will include:
- Janet Hieshetter, Executive Director, DMRF
- Dee Linde, Portland Area Support Group Leader
- Delaram Safarpour, MD, MSCE, FAAN, Medical Director, Deep Brain Stimulation Program (OHSU)
- Daniel Cleary, MD, PhD, Neurosurgeon and Assistant Professor of Neurological Surgery, School of Medicine (OHSU)
Dystonia News
Latest Developments

Ask Me About Dystonia Buttons Available Now
It’s the ultimate conversation starter—the “Ask Me About Dystonia” button. DMRF’s Chief Scientific Advisor Jan Teller, MA, PhD, proudly wore his “Ask Me” button during the Mechanisms of Reduced Penetrance

Arkansas July Fundraiser in Support of DMRF
William’s dystonia journey did not become obvious until he was four years old, when he started having trouble walking. It appeared some days as a limp and at other times

Welcome to Summer and the Return of Dystonia Zoo Days!
Summertime is a time of community, support and awareness for those living with dystonia. By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Memorial Day is traditionally the start of
Current Dystonia Research Investigations
The Dystonia Medical Research Foundation (DMRF) prides itself on a long history of supporting and stimulating dystonia research