You Can Be A Dystonia Advocate!
Make a Difference in the Lives of People with Dystonia
Make a Difference in the Lives of People with Dystonia
Do you have dystonia or know someone who has it? Would
you like to contribute to finding a cure? You can make a difference in the life
of people who are affected by dystonia by becoming an advocate. Come and join others to educate legislators
as to the needs of the dystonia community while sharing your personal
experiences with dystonia. Advocacy Day is immensely satisfying, easy (training
provided) and fun!
On April 29 & 30, come to Washington, DC and join others who are part of the Dystonia Advocacy Coalition (DAC). Let’s make a difference together!
To learn more, contact Jill Burgos at 800 377 3978 or 312 755 0198.
On April 29 & 30, come to Washington, DC and join others who are part of the Dystonia Advocacy Coalition (DAC). Let’s make a difference together!
Last year, dystonia advocates helped to:
Increase funding for the National Institutes of Health – to support research that will advance dystonia research
Protect regional Medicare discretion to determine coverage of DBS for qualifying persons
- Maintain access to effective treatments for dystonia
To learn more, contact Jill Burgos at 800 377 3978 or 312 755 0198.
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