What the DMRF can do for you

What the DMRF Can Do For You

One of the most important things for you to remember is that you are not alone in your experience with dystonia. There are resources for you to use, and people to support you. The Dystonia Medical Research Foundation (DMRF) is dedicated to helping all people with dystonia.

The DMRF does three main things:

Sponsors medical research for better treatments and a cure for dystonia
Helps educate people with dystonia and their families about the disorder as well as educating the general public
Provides resources to help people and families with dystonia live successfully with dystonia

Become familiar with the resources that the DMRF can provide you:

Information about dystonia and treatments
Materials about coping with dystonia
Opportunities to meet with others with dystonia through support groups and/or patient meetings
Information about the resources on the Internet
Opportunities to volunteer your time on behalf of all people with dystonia

If you have questions about dystonia or the dates of patient meetings, contact the DMRF. The staff will answer phone calls, emails, or letters—whatever makes you the most comfortable.

Making the effort to reach out and meet other people with dystonia—especially other teenagers—may be one of the most important gifts to give yourself. This is not always easy, but there are ways to do it. You and your parents are welcome to contact the DMRF for more information about opportunities to meet or be in contact with other families affected by dystonia.

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