Volunteers Needed for Global Dystonia Registry



The DMRF is pleased to announce the launch of the Global Dystonia Registry.  This is the first ever patient registry devoted to focal dystonias. It is designed to collect data submitted from persons affected with a focal dystonia(s) to assist in clinical research efforts including clinical and research trials. 

As a supporter of this registry, the DMRF encourages you to consider participating. Although the focal dystonias have many different manifestations, most experts believe they share a common pathogenesis or mechanism that causes the disorder. The common causes may be a similar gene defect, similar lifetime experiences, or both. Collecting information from different patient populations may help us identify the common features that they may share. This Registry compliments the current scope of research for the Dystonia Coalition, a National Institutes of Health supported clinical research effort.

Your participation is important for this effort to be successful. To learn more or to register with the Global Dystonia Registry go to: http://www.globaldystoniaregistry.org/


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