I have found a lot of people lately asking me about my dystonia. Most people are scared to offend me if they ask but I don’t get offended at all. I think most people would rather you ask them then stare or assume they have something completely different. My family doctor had no clue what dystonia was so the awareness is needed EVERYWHERE. Having people ask you about your dystonia gives you a great opportunity to spread awareness. I think the easiest way for me to share my story is by throwing a fundraiser. You are able to reach so many more people in your community this way. I love it when people who have never heard of dystonia suddenly become intrigued. You can do all different kinds of fundraisers.

Anything from

--A 5k walk

--A bowling tournament

--A basketball marathon

--A bake-off

--A golf tournament

--An art gallery exhibit

--A jail n’ bail event

--A silent auction

--A dinner dance

--A letter campaign