Sarah's Blog

Who is Sarah?

Sarah is a Job Coach who lives in the Midwest. She began having symptoms of dystonia as a child in the second grade, and was diagnosed four years later. Dystonia affects her neck and left hand. Over the years she has been treated with oral medications and botulinum toxin injections, though her symptoms no longer respond to either of these approaches. Sarah remains hopeful: "I am currently waiting for the next medical breakthrough!"

Sarah is an active DMRF volunteer. She has been a guest presenter at several symposiums and is a member of the DMRF's Junior Advisory Council. She has organized multiple fundraising events including the "Jail n' Bail" events at Ball State University.

Getting to Know Sarah – 20 Questions

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