Catching Up with Remy Campbell of "Twisted"
One of the most gripping scenes in the dystonia documentary Twisted is also one of the most difficult to watch. When Remy Campbell places her remote control device over her chest and temporarily turns off her deep brain stimulator, the audience is both intensely curious and a little terrified to see what will happen next. Watching Remy’s body crumble and twist under the grips of dystonia only to be restored upright after the device is tuned back on is so dramatic that it’s almost unbelievable. How can it be that
Remy and her DBS remote control device. Photos courtesy of Blind Dog Films
the line between being able-bodied and severely disabled is so thin, defined quite literally by the flip of a switch?
After years of living with severe generalized dystonia, deep brain stimulation has given Remy the mobility and pain relief to live an active life. She works, dances, and continues to pursue her love of art and film.
When asked what it meant to her to be included in Twisted, Remy told Independent Lens, “I was honored to be able to share my story. I feel that there are many people out there in similar situations as I was. I hope my contribution to the film will inspire others not to give up.”
You can help! Click here to support research for dystonia treatments and a cure.
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