Network Leadership
To help individuals and families overcome the everyday obstacles and challenges of living with dystonia, the DMRF has established a Regional Network of volunteer leaders.
Support groups are active throughout the United States and Canada. Most support groups offer an inspiring blend of self-help and community involvement through awareness and/or fundraising.
Support groups are active throughout the United States and Canada. Most support groups offer an inspiring blend of self-help and community involvement through awareness and/or fundraising.
Volunteers of all backgrounds and abilities play a vital role in the dystonia community.
Regional Coordinators serve as liaisons between support group leaders and the headquarters office.
Several specialty volunteer groups exist such as:
Junior Advisory Council
Media Action Group
Public Policy Committee
Parents Council
Paroxysmal Dystonia & Dyskinesias Network
Oromandibular Dystonia Network
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