Mission & History

The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families.

The membership of the DMRF is comprised of individuals living with all forms dystonia, their friends and families, donors, healthcare professionals, and researchers, uniting people of all backgrounds and abilities to better serve those living with dystonia.

The DMRF was founded in 1976 by Samuel and Frances Belzberg, of Vancouver, British Columbia, after their daughter was diagnosed. Dedicated to serving the needs of all persons affected with dystonia and their families, the DMRF has grown from a small family-based foundation to a membership-driven organization of approximately 38,000 persons.

The DMRF is governed by a volunteer Board of Directors led by the President. Led by the Scientific Director, the Medical and Scientific Advisory Council is comprised of pre-eminent scientists in multiple disciplines that include microbiology, genetics, brain circuitry, and epidemiology.

The Volunteer Network was established 1993, serving as a local conduit for support, awareness, and fundraising. The country is divided into seven regions served by volunteer Regional Coordinators who work with the local support groups and contacts to and the leadership appointees in the areas of Awareness, Advocacy, Development, Medical Education, and Children's programming.

The Dystonia Medical Research Foundation is a non-profit 501(c)3 organization and its US Tax ID Number is 95-3378526.

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