• Donate
• Promote Awareness
• Fundraise
• Join a Support Group
• Join the Junior Advisory Council
• Join the Media Action Group
• Become a Legislative Advocate
• Become a Brain Donor
  • Frequently asked questions
  • Contact information
• Participate in a Clinical Trial

As a person who has dystonia or an affected family member, you have an important and compelling story to tell. Sharing your story with the news media—newspapers, magazines, television programs, radio shows—can be an effective way to promote awareness. Your experience with

Using the news media is a way to promote awareness.

getting diagnosed, treatments, and your daily life with this disorder can help educate local and national audiences.

The Media Action Group (MAG) is a group of volunteers who are promoting awareness by contacting local news media and “pitching” their stories and stories related to the DMRF. The DMRF can provide press materials andguidance to help you make the most of news opportunities in your community.

For more information, contact the DMRF at 800-377-DYST (3978) ordystonia@dystonia-foundation.org