Dystonia Patient Registries

Patient registries help researchers better understand dystonia by collecting information directly from volunteers who are diagnosed. The DMRF is proud to support the following patient registries and encourages individuals to consider participating:

Global Dystonia Registry - https://globaldystoniaregistry.org/
The Global Dystonia Registry is part of the Dystonia Coalition, a cooperative project between medical researchers and dystonia patient advocacy groups, for which the DMRF serves as an administrative center.

Dystonia International Patient Registry (DiPR) - http://www.dipregistry.com/
The DMRF is partnering with Tyler's Hope for a Dystonia Cure in support of this registry which focuses on DYT1 dystonia

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