Become a Dystonia Advocate
As a citizen and a constituent, you are in a powerful position to influence policy makers responsible for areas of government that impact people with dystonia.In order to accomplish our advocacy goals, volunteers are needed to visit the local offices of our Federal Representatives and Senators to urge them to support increased funding for dystonia research and other issues such as the Genetic Non-Discrimination Act. To this end, the DMRF has created the Public Policy Committee to help supply individual volunteers and support group members with the tools and guidance they need. You’ll find several tools on this website.
The information provided here will start your advocacy journey and will be updated from time to time. Together, let’s make dystonia an obsolete word.
For more information about advocacy and the Public Policy Committee contact the DMRF at 800-377- (DYST) 3978 or email at
dystonia@dystonia-foundation.org
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