Become a Brain Donor

Donating your brain to science is a selfless act to help advance dystonia research. While financial donations provide researchers with the essential funding they need to conduct investigations, brain donations provide the invaluable opportunity to physically examine the area of the body where symptoms originate. The brains of deceased dystonia-affected persons (with all forms of dystonia) and their family members are a precious and scarce resource that researchers value deeply in the pursuit of a cure. You can have a very real effect on the advancement of dystonia research without sacrificing anything from your existing life.

Your body contains clues vital to solving the puzzle of dystonia. Please consider becoming a brain donor and discuss this possibility with your family members.

Download brochure:"Advancing Dystonia Research Through Brain Donation."

Why Donate?
Giving scientists the opportunity to study brain tissue is a crucial step toward developing improved therapies and a cure for dystonia in all its forms. Brain donation provides the opportunity to contribute to the field of dystonia research in a practical, tangible way that will assist researchers working today and resonate in future generations.

Volunteering your brain to science so that researchers can learn about dystonia is the greatest donation to research an individual can make. By combining brain donation with your monetary support, you multiply your assistance to the progress of dystonia research immeasurably.

Most religious organizations fully accept brain donation. Tissue donation embodies the highest principles upon which all religions are based: generosity, compassion, and love.

Beginning the Process
The DMRF works in partnership with theNICHD Brain & Tissue Bankat the University of Maryland to assist people interested in registering as brain donors. The first step to becoming a brain donor is to request additional information from the DMRFby phoning 800-377-3978 or emailingbrainbank@dystonia-foundation.org

You may also contact the Brain & Tissue Bank directly at 800-847-1539 or 410-706-1755; andbtbumab@umaryland.edu.If you contact them, please let them know that you are affiliated with DMRF and ask them to notify our organization that you are enrolling in the brain donor program.

Your donor information remains confidential, and you have the right to withdraw from the program at any time.

Click here forfrequently asked questionsabout brain donation.

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