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Articles- 11.28.11
- NEW! 10 Tips for Building Resilience - from the Dystonia Dialogue
The Winter 2012 issue of the Dystonia Dialogue featured the stories of how two members cope with the ups and downs of treatment. The American Psychological Association suggests ways to build and promote resilience in difficult times.
- 11.28.11
- NEW! Resources for Job Seekers - from the Dystonia Dialogue
A list of websites that may be helpful for individuals in the dystonia community with questions about employment rights or Social Security disability benefits.
- 08.22.11
- Memoirs of a Cheetah - From the Dystonia Dialogue
Dolores September of the Portland, Oregon & Southwest Washington Dystonia Support Group shares an excerpt from an unpublished work that describes the her earliest experiences with dystonia and her family's reaction to her unexplained symptoms.
- 02.14.11
- Living History: Ed Cwalinski Embodies Advancement of DBS for Dystonia - from Dystonia Dialogue
Ed Cwalinski is one of only a handful of people with dystonia who have had DBS hardware implanted for over a decade. He is a living, breathing example of the history of DBS for dystonia.
- 02.14.11
- Walking With Her Heart Wide Open - from Dystonia Dialogue
A year ago, Millie was in the hospital. Shockingly, at age 35, she was starving to death due to extremely rare side effects associated with her dystonia. And yet, months later, she was literally back on her feet and leading a TV news crew from Telemundo on her visits to Congressional offices in Washington as part of Dystonia Advocacy Day. Find out how she did it.
- 02.14.11
- Going Global: a Research Update - From the Dystonia Dialogue
DMRF Science Officer Dr. Jan Teller shares the latest developments in dystonia and how the DMRF's collaborations are advancing the field.
- 11.23.10
- Scenes From Western Regional Symposium - From the Dystonia Dialogue
Dystonia community comes together for education and support.
- 11.22.10
- Magic Straws, Dystonia Angels & Never Giving Up - From the Dystonia Dialogue
Read about Jim Gianelli's extraordinary journey to find the treatment strategy that works for him.
- 08.02.10
- Scenes from the DBS Symposium & Dystonia Forum - from the Dystonia Dialogue
Over 100 people attended a double-decker event co-sponsored by the Dystonia Medical Research Foundation (DMRF), the University of California, San Francisco Movement Disorders Program, and the DBSforDystonia online bulletin board.
- 08.02.10
- A New Jersey Yankee in King George's Court: From the Dystonia Dialogue
Ever since Joanna Manusov's mother Janice reached out to acquire a NY Yankees baseball cap to help Joanna feel better about having to shave her head for deep brain stimulation surgery, members of the team have gone out of their way to make Joanna and her parents feel like MVPs.
- 03.17.10
- Doors and Windows: When Dystonia Makes it Too Hard to Work - From the Dystonia Dialogue
Individuals from the dystonia community share how the disorder has impacted their careers and employment.
- 07.27.09
- Catching Up with the Stars of Twisted: From the Dystonia Dialogue
Volunteer freelance writer Benjamin Krepack interviews the individuals who appeared in the dystonia documentary, Twisted.
- 03.02.09
- Employer Honors DMRF Member: From the Dystonia Dialogue
Club Scrap raised over $6,000 for dystonia research on behalf of employee Mary Laehn.
- 03.02.09
- Valentino's Friends: From the Dystonia Dialogue
A young man in Portland, OR struggles to access the medical care he needs.
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