About the DMRF - Fact sheet

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About the Dystonia Medical Research Foundation

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Since it's founding, the Dystonia Medical Research Foundation (DMRF) has funded more than $22 million in groundbreaking research into the causes and treatment of dystonia, a little-known but surprisingly common neurological movement disorder that affects more than 300,000 people in North America alone.

DMRF was founded in 1976 and has since grown into a membership-driven organization of over 38,000 people.

Having recently celebrated its 30th anniversary, the DMRF is a national non-profit organization based in Chicago with 75 local volunteer groups across the United States, whose mission is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individuals and families. Its innovative "Cure Dystonia Initiative" seeks to accelerate the development of more effective treatments for dystonia with the ultimate goal of finding a cure.

Since 2001, the DMRF has organized regular patient meetings including Children and Family Symposiums which provide a weekend for dystonia-affected youth and their families to learn about dystonia and available treatments, enjoy the camaraderie and fellowship of others living with the disorder, and inspire hope that despite challenges, children with dystonia are capable of growing into productive, fufilled adults.

The DMRF is based in Chicago and is led by Board Chairman.Co-founder Samuel Belzberg, Board President Claire Centrella, and Executive Director Janet Hieshetter.

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