About the Foundation

Founded in1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.

Visit DMRF Insights for an inside look at the Foundation's latest news and activities.

Contact the DMRF

In the video below, reporter and broadcaster Fiona Ross, now Chair of the Dystonia Society UK, interviews President of the Dystonia Medical Research Foundation (DMRF) Art Kessler about how the DMRF is working to advance research and support affected individuals and families. Art Kessler has lived with symptoms of dystonia since childhood.



Below, Board Members Nancy Harris and Dennis Kessler talk about the progress they have seen in the dystonia community since the early days of the DMRF and the personal connections that keep them active with the Foundation after all these years.



To view additional videos about the work of the DMRF, visit our YouTube channel at:http://www.youtube.com/facesofdystonia

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