Privacy Policy

Conditions of Use/Privacy Statement for www.dystonia-foundation.org

The information contained in this website is for informational and educational purposes only. While it is based on professional advice, published experience, and expert opinion, it does not represent a therapeutic recommendation or prescription. We urge you to obtain medical advice from a licensed, trained, and competent medical provider. With respect to this website, the Dystonia Medical Research Foundation (also referred to as "DMRF"):

1. Makes no express or implied covenants, warranties, or representations of any kind regarding any of the information contained on this website;

2. Disclaims all liability of any kind for the content of any information transmitted to or received by any individual or entity in connection with such individual or entity's use of this website; and

3. Does not endorse or recommend in any way any such information contained in this website.

With respect to any legal issues relating to any of the information or issues contained on this website, you should obtain legal advice from your own licensed, trained, and competent legal adviser(s).

In consideration of your accessing this website, you agree that:

1. Under no circumstances shall the DMRF, its volunteers, agents, employees, or directors be liable for any damages whatsoever in connection with, arising out of, or resulting from your use of the this website or any information contained in this website or referred to in this website; and

2. You will defend, indemnify same, and hold harmless the DMRF, its volunteers, agents, employees, and directors from any and all suits, claims, demands, causes of action, judgments, damage, losses, liabilities and expenses, including attorneys' fees, consultant fees and expert witness fees arising out of or resulting from your use of this website or any information referred to or contained therein.

Any email or other information sent to the DMRF may be used by the DMRF in furtherance of its corporate purposes, including but not limited to, compiling databases and developing promotional materials, testimonial materials, and responses to inquiries. For your email to remain private, you must expressly state that request in your correspondence.

 

Privacy

The Dystonia Medical Research Foundation (DMRF) has created this privacy statement to demonstrate our firm commitment to privacy. The following discloses our information gathering and dissemination practices for this website: www.dystonia-foundation.org

We use your IP address to help diagnose problems with our server and to administer our website. Your IP address is used to help identify you and your shopping cart.

Our registration forms require users to provide contact information (like name and email address) and demographic information (like zip code). We use customer contact information from the registration form to send the user information about the DMRF. The customer's contact information is also used to contact the visitor when necessary. Users may opt-out of receiving future mailings; see the choice/opt-out section below.

This site contains links to other sites. Dystonia Medical Research Foundation (www.dystonia-foundation.org ) is not responsible for the privacy practices or the content of such linked websites.

Our site uses an order form for customers to request information, products, and services. We collect visitor's contact information (like their email address) and financial information (like their account or credit card numbers). Contact information from the order form is used to send orders and information about DMRF to our customers. The customer's contact information is also used to get in touch with the visitor when necessary. Information collected is used solely by DMRF and is not distributed to third parties. Users may opt-out of receiving future mailings; see the choice/opt-out section below. Financial information that is collected is used to bill the user for products and services.

Our online surveys ask visitors for contact information (like their email address). Information collected is used solely by DMRF and is not distributed to third parties. Users may opt-out of receiving future mailings; see the choice/opt-out section below.

 

Public Forums

This site makes chat rooms, forums, message boards, and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.

 

Security

This site has security measures in place to protect the loss, misuse, and alteration of the information under our control. We use industry-standard SSL encryption to scramble credit card information on the way from the shopper to our server. Our servers are protected and require user authentication for access.

We also understand the value of customer lists to direct marketers, and our policy is that this information is our property only. We do not sell customer names.

 

Choice/Opt-Out

The DMRF provides users the opportunity to opt-out of receiving communications from us and our partners at any time.

Users have the following options for removing their information from our database to not receive future communications or to no longer receive our service.

1.Contact: dystonia@dystonia-foundation.org by email

2. Send a request to:
Webmaster
Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905

 

Correct/Update

This site gives users the following options for changing and modifying information previously provided.

1. Contact: dystonia@dystonia-foundation.org by email

2. Send a request to:
Webmaster
Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905

 

Copyright

Materials copyrighted by the Dystonia Medical Research Foundation, or any other individual or entity are for personal use only and may not be reprinted or reproduced in any manner unless prior written consent is obtained from the Dystonia Medical Research Foundation.

If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact:

Dystonia Medical Research Foundation
One East Wacker Drive, Suite 2430
Chicago, Illinois 60601-1905

Accelerating Research & Inspiring Hope

The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.